Posts tagged Beckwith-weidemann syndrome
Owen

“Aw he’s so cute, look at him sticking out his tongue!”

“How come his tongue is never in this mouth?”

“He was born when?! He’s huge!”

“What’s with his tongue?”

These are just a few of the many questions we received and continue to receive about our son Owen’s appearance. He was born with Beckwith-Wiedemann Syndrome, a rare genetic syndrome that increases his risk of developing childhood cancer.

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