epilepsy — Stories to Inspire

Posts tagged epilepsy

Hailey

Meet Hailey and learn about life with Sturge Weber Syndrome.

Sturge Weber Syndrome | port wine stain | vascular malformation | glaucoma | seizures | epilepsy | infantile epilepsy | inclusion | inclusion matters | disability education | disability advocate

share your storyMacy GilsonJanuary 12, 2022Sturge Weber Syndrome, port wine stain, vascular malformation, glaucoma, seizures, epilepsy, infantile epilepsyComment

Emma and Abby

Learn more about Emma and Abby, two sisters with a rare genetic disorder called THAP12!

infantile spasms | genetic mutation | disability advocate | special needs | special needs family | special needs parenting | inclusion | inclusion matters | infant epilepsy | epilepsy | disability education | disability advocate

share your storyMacy GilsonJune 1, 2021genetic mutation, THAP12, rare disease, rare genetic syndrome, rare deletion, rare chromosomal deletion, infantile epilepsy, epilepsy, epilepsy warrior, infantile spasms, genetic disease, lightning and love, seizure disorder, seizure, stem cell research, brain MRIComment

Lawson

Learn more about Lawson, an amazing warrior with cerebral palsy!

cerebral palsy | #CPawarenessmonth | #CPawareness | #morealikethandifferent | disability advocate | special needs | special needs family | special needs parenting | inclusion | inclusion matters | hypoxic ischemic encephalopathy | NICU | NICU warrior | brain injury | anoxia | global developmental delay | developmental delay | childhood sleep disorder | childhood epilepsy | epilepsy

share your storyMacy GilsonMarch 25, 2021cerebral palsy, cp, cp awareness month, Spastic Diplegic Cerebral Palsy, hypoxic ischemic encephalopathy, epilepsy warrior, epilepsy, childhood sleep disorder, sleep disorder, NICU, NICU fighter, NICU baby, intellectual disability, visual impairment, cerebral palsy awareness dayComment