rare syndrome — Stories to Inspire

Posts tagged rare syndrome

Madison

Learn more about Madison, an amazing warrior with a rare chromosomal syndrome. 5Q14.3 micro-deletion syndrome | rare syndrome | genetic syndrome | disability awareness | disability advocate | special needs | special needs family | special needs parenting

share your storyMacy GilsonNovember 20, 2020rare syndrome, rare chromosome syndrome, rare chromosomal deletion, 5Q14.3 micro-deletion syndrome, rare genetic syndrome, genetic syndromeComment

Ava

Learn more about Ava, an amazing warrior with Angelman Syndrome. rare disease | rare disorder | epilepsy warrior | apraxia | disability advocate | special needs | special needs family | special needs parenting | inclusion | inclusion matters |

share your storyMacy GilsonAugust 3, 2020angelman syndrome, rare syndrome, rare disease, epilepsy warrior, seizure disorder Comments