Sloan

On April 9th, 2019, Sloan LouElla was born! After 9 years of marriage + fur-baby-parenting, we were adulting to our max capacity (joking, haha, does anybody actually do that?)...and we were excited for our little human-baby. We had prepared, prepared, and prepared. We started a ‘baby box’ in 2016 - just collecting little things for our future human while we were out traveling, shopping, etc - and we were ready for what we thought was going to be a very typical birth/baby experience. After an extremely intense, traumatic, beautiful, life-altering year - we’ve learned that while preparation is wonderful, some of the most amazing, life-altering experiences come from the moments you least expect.

share your storyMacy GilsonSeptember 30, 2019CHARGE Syndrome, disability advocate, share your story, special needs parenting, special needs, cleft lip, cleft lip and palate, NICU, NICU baby, NICU fighter, medically complex, tracheostomy, deafblindComment

Lily

It took my husband and a I a little while to get pregnant. There is a history of PCOS in my family and I wasn’t spared. It took several combinations of medications to get us there in a little over a year with no shortage of tears and frustrations. On March 8, 2018 I got the faintest positive on a pregnancy test. A week later we went in for an ultrasound and our nurse gave us the shock of our lives: twins.

share your storyMacy GilsonAugust 26, 2019chronic lung disease, preemie, NICU, NICU baby, tracheostomy, NICU fighterComment

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