Posts tagged Aicardi-goutieres syndrome
Leo

After a very normal pregnancy, and semi-normal birth on February 22, 2016, Leo made his way into the world. After the first couple of days my husband and I started to worry that something wasn't quite right. Leo was unable to keep his temperature up and had an odd jerking movement that we noticed. The doctors all brushed us off and insisted nothing was wrong, we were just paranoid new parents. So we took him home and tried to ignore our guts. After just a few days home we couldn't take it anymore. We knew in our hearts something just wasn't right. We took him straight to the children's hospital that was an hour away and hoped they would listen. And thankfully, they did.

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