Posts tagged spina bifida
Jameson
Jameson

On November 27th, 2018, my husband and I went in for my 22 week ultrasound. We went in so excited because we were finally finding out the gender and were planning a gender reveal party later that night with our friends and family. The tech wrote it on a paper and the nurse called my sister in law to let her know the gender (since she was the one making our cake pops for the reveal). Once the tech had written down the gender, we met with my doctor to discuss the ultrasound. The first thing he told us was, “We need to talk.”

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share your storyMacy Gilsonspina bifida, hydrocephalus, share your story, NICU baby, NICU fighterComment
Sebastian
Sebastian

I remember when the doctor so non-chalantly said, "Your baby has Spina Bifida." I promise you, I looked at my husband, with a shoulder shrug, like, “Oh, okay,” and then turned to the doctor and asked, "Well, what's that mean?" I'm not sure what we thought it meant, but we were not ready for the diagnosis we were given. He explained to us what spina bifida was, and that it would need to be surgically repaired. Instantly the tears poured out. How could this be happening again? 

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share your storyMacy Gilsonspina bifida, share your story, awareness, sensory processing disorder, hydrocephalus, kindness matters, advocateComment